Finding Connection: Eczema & Me 

Living with eczema goes beyond just managing symptoms—it deeply affects mental wellbeing, self-esteem, and overall quality of life. At our latest Online Peer Support Meeting: Eczema & Me we had a powerful discussion about the emotional impact of eczema and the importance of finding support. Here are some key insights from the session: 

The Power of Shared Experience 

One of the strongest messages from the session was the value of connecting with others who truly understand. Our special guest speaker, Director & Clinical Psychologist at Axis Clinic Kylie Copeman emphasized the importance of shared lived experience—having a group of people who have walked a similar path can provide comfort, understanding, and practical advice. 

Loneliness & Lost Time 

Eczema can be isolating, and the emotional toll is significant. During our recent Peer Support Group, common themes emerged around grief for lost time—years spent managing symptoms, missing out on social events, and feeling disconnected from others. Many participants reflected on the challenges of navigating life with eczema, from concerns about the future to the impact on relationships and personal goals. Stories of resilience and perseverance were also shared, highlighting how individuals have adapted, found support, and reclaimed aspects of their lives. We are deeply grateful to everyone who participated for their honesty and openness in fostering a supportive community. 

Key Takeaway: Recognizing and processing these feelings is essential, and connecting with others who understand can make a huge difference. 

The Financial Burden of Eczema 

The cost of managing eczema can be overwhelming. From treatments to lost opportunities, many people feel like they are constantly “behind the 8-ball.” Participants voiced concerns about the financial pressure of ongoing care and the impact it has on their future goals. 

Kylie Copeman provided a valuable tip: Always take photos of your prescriptions before doctor visits to avoid unnecessary repeat scripts, potentially saving hundreds of dollars.

Breaking the Cycle of Stress & Eczema 

Eczema and stress are deeply connected—flare-ups cause stress, and stress triggers more flare-ups, creating a frustrating cycle. Taking mental health breaks and practicing self-compassion were highlighted as essential strategies.

Kylie introduced the concept of Radical Acceptance—acknowledging that some challenges are unfair or difficult but choosing to manage them in a way that promotes mental resilience. She encouraged Reframing thoughts, that means mindful interactions with negative thoughts, focusing on small positives rather than being overwhelmed by setbacks.

Finding Strength in Connection 

Throughout the discussion, the importance of talking, listening, and being heard was reinforced. When people share their struggles, they not only unburden themselves but also help others feel less alone. 

Practical ways to foster connection include: 

• Joining ESA support groups (both online and in-person) 

• Engaging in mental health courses and resources 

• Practicing gratitude to shift focus away from struggles and onto small wins 

• Seeking professional support when needed 

Moving Forward Together 

Our discussion was emotional, insightful, and filled with moments of real connection. The journey with eczema can be tough, but you are not alone. There is strength in finding your community, sharing your story, and taking proactive steps toward mental wellbeing. 

Looking for support?

Join our Eczema Support Australia  Closed Facebook groups: Families /Adults /Teens

Explore our free self-paced online course: Eczema Empowerment: Building Self-Esteem and Mental Wellbeing 

Join Eczema Support Australia’s Psychology Pilot Program – Access up to 3 FREE* sessions with a professional that has a strong understanding of the issues our members face, either face-to-face or online, and access the support you need, when you need it, without worrying about the cost.

Together, we can navigate the challenges of eczema with strength and resilience.